We need to be honest about who cares for our seniors

Last week in Chicago the American Society on Aging held a conference packed with ideas and best practices focused on the growing numbers of seniors across our country.  Speakers included Janice Lynch Schuster, who guest blogged here recently.

In her comments Lynch Schuster shared these eye-opening data from the Family Caregivers Alliance on who cares for the aging and what impact that work has on the caregivers:

  • Right now, 44 million people—2/3 of them women–care for someone who is over 50
  • About a third of those are caught in the tragedy and frustration of providing dementia care. And a remarkable one-third care for multiple older adults.
  • The average caregiver is a 48 year old woman who is married, works outside the home, and earns $35,000 a year.
  • Many of these caregivers are old themselves: and the older they are, the harder they longer they work at providing care. Those over the age of 75 are at it full-time.
  • Caregiving hurts women. We report higher levels of depression, anxiety, and stress. A quarter have health problems stemming from their caregiving duties. We develop more hypertension, have lower perceived health status; poorer immune function; slower wound healing; and we die more quickly.
  • We take a career hit: 1/3 decreased work hours; 1/3 passed up an assignment, promotion, or training; 22% took a leave of absence; 20% switched from full-time to part-time work; 16% quit entirely.
  • We take a financial hit to our pension prospects, retirement savings, and Social Security benefits.  This adds up to a total loss of more than $325,000 for women (and about $280,000 for men).With that kind of money, you could buy a really good long-term care insurance policy: But it gets the caregiver little that is tangible in return.

As pointed out in the data here, the women are doing the heavy lifting (literally and figuratively) for our elders.

Lynch Schuster likens the care of our seniors to a trend which will, and should, become another rallying point among women, families, and eventually men.

She says this about the demands and expectations which take a toll on women:

“A word about men: Statistics indicate that more men are becoming family caregivers—but for any number of reasons (cultural, social, gender, whatever), the actual hands-on work overwhelmingly falls to women, and men focus more on things like financial management and hiring aides.

Like childcare, caregiving to adult family members is women’s second shift. Early feminists wanted the movement to open up society—to let men change diapers and take paternity leave and allow women be CEOs and secretaries of state—and caregiving will have to do that too. But first, we need to make it more prominent.”

She’s right. The burden falls on women. She’s also right when she, and others, say that women need to organize and speak up now. We won’t, can’t, and shouldn’t have to bear the weight of caring for our elders alone. And as the data indicate, before too long the majority of caregivers will become those who need care themselves.

Sign on to improve elder care here. And share this information (because none of us are getting any younger).

Innovative idea for an aging country

Georgians over the age of 65 make up 11 percent of our state’s 9.9M citizens. Over 110K Georgians are 85 and older. Rural Georgians have fewer choices to care for the oldest among us. We lack a strong network of programs like Meals on Wheels, day care programs, home health providers, and nursing and retirement homes.

How will we adequately and compassionately care for all our elders in Georgia and across our country?

Janice Lynch Schuster, poet, award winner writer, and advocate for aging populations, has a suggestion for providing affordable and high quality care for our elders. Her post is reprinted here with her permission.

Caregiver Corps: Tapping A Nation of Caring People

By Janice Lynch Schuster

I recently participated in a Twitterchat (#eldercarechat), where someone raised the question of what we want government to do to improve the lives of the nation’s 60 million family caregivers. Someone suggested creating a Peace Corps-like program to recruit new graduates to serve family caregivers. I immediately volunteered to launch a petition to do just this, and wrote one on the White House website, which encourages civic engagement.

My petition is very short. It seemed to me that in the context of trying to raise interest and garner signatures, I needed to be to the point (http://wh.gov/GURc). It reads:

We petition the Obama Administration to: Create a Caregiver Corps that would include debt forgiveness for college graduates to care for our elders. More than 60 million Americans are family caregivers. They face challenges: Health suffers. Finances suffer. Families suffer. Aging Boomers will overwhelm our caregiving resources. Let’s create a Caregiver Corps, that would marry college debt forgiveness with programs that place recent graduates with families and aging services providers. Let’s bridge the generational divide that promotes ageism. Let’s do it!

One of my Twitter followers admonished me for my lack of detail. Without it, she said, no one would take me seriously.  The idea is in its early stages, and would require thoughtful analysis and number-crunching by experts. But in the meantime, here’s the general idea for it.

Why We Need a Caregiver Corps

Several demographic trends are creating a future that will leave families and our beloved elders overwhelmed, exhausted, and bankrupted by the challenges of living with old age-that is, living past 80–with multiple chronic conditions that will, no matter what they do, kill them. In any given year, some 60 million Americans serve as family caregivers to another adult, someone who is either old, disabled, or both. (And millions more care for children and young adults who live with serious disabilities, and face even more challenges in terms of education, employment, and so on.)

These families will run square into a medical system that is not prepared to care for them in the ways the need most.  These individuals might sometimes need rescue and cure—but they will more often need long-term supports and services, and help with things like transportation, hygiene, and food.  And while they’ll have plenty of access to ICUs and new hips and knees—they will be shocked and disheartened by the costs of all the things they will need to pay for on their own: private-duty nurses, for instance, and home care; transportation and food and skilled nursing care.

Unless these families spend-down to become Medicaid beneficiaries or have adequate long-term care policies, their costs will be out of pocket. And those costs will be beyond reach for most middle-class Americans.

In the meantime, the social services agencies meant to serve aging Americans continue to handsbe devastated by short-sighted budget cuts. Sequestration alone, one estimate suggests, will eliminate 800,000 Meals on Wheels in the State of Maryland.

And there will be few people to provide the hands-on care that these adults will need. The nation faces a profound shortage of people trained in geriatric care, from geriatricians to nurses to direct care workers. These shortages stem, in part, from the relatively low pay geriatricians earn, and the outright unlivable wage direct care workers receive. By one estimate, by 2030, when all of those Boomers are in their dotage, there will be one geriatrician for every 20,000 older adults.

A Caregiver Corps: Hope—and Help–for Us All

What’s a country to do? Launch a Caregiver Corps, a program modeled on similar valuable, successful, and long-lived efforts, such as the Peace Corps, AmeriCorps, VISTA, and Teach for America. The program could recruit volunteers: high school graduates not trained for the workforce; college graduates facing a tough economy and huge undergraduate debt; and older adults, those healthy enough to want to remain in the workforce and contribute to others’ well-being.

Volunteers could sign up for a year or two. In exchange for their service, they could earn tuition credits to cover the cost of college; they could receive some degree of loan forgiveness, to lessen their burden of debt; they could be paid a stipend that acknowledges the value of their work. They could be assigned to community-based organizations that serve older adults, such as Area Agencies on Aging, non-profit health care institutions, social services agencies, and others.

While volunteers could offer enthusiasm, compassion, and insight, they could also learn the kinds of skills required to care for an older adult and his or her family. They could learn about the public policies that affect that care. They could acquire medical and nursing skills—the kind of skills family caregivers use routinely in their daily routine. They could be exposed to older people, and bridge the generational gap that splits our country on this demographic. In the end, they might even be inspired to pursue a career that features caring for one another.

That, it seems to me, is something Americans have always done best—and will have to do more, as we all reach our own old age. Developing people who have the skills, resources, and motivation to help us in our self-interest. And it is in theirs, too. Millennials face the highest unemployment of any group in the country, and finding ways to become marketable, employable adults is critical to their own security and future.

So, let’s try it. Let’s create a Caregiver Corps. Let’s get the Administration to think about it, and weigh in. It’s time, really, to move forward. We need 150 signatures to push the petition to the public pages of We the People. Please take a moment to add yours:

https://petitions.whitehouse.gov/petition/create-caregiver-corps-would-include-debt-forgiveness-college-graduates-care-our-elders/vZ5WhStx

Janice Lynch Schuster specializes in writing about aging, caregiving, and end of life issues, and is a co-author of an award-winning book on the topic, Handbook for Mortals: Guidance for People Facing Serious Illness (Oxford University Press, 2012).

 

 

Rural and Progressive

Disclaimer: Rural and Progressive is a self-published website. Any contributions supporting the research, web platform, or other work required for the owner and any invited guest contributors, is not tax deductible. Rural and Progressive is not operating as a nonprofit entity.